Events
Please join us for informal chats where we can all get to know each other, share experiences, ask questions - There’s nothing better than connecting with others who are on a similar journey!
Please see the heading “Community Connections” to learn about our other meetups.
Virtual Coffee Chat with Dr. Barañano
Navigating the challenges of parenting children with ataxia can often feel isolating. Our partner, the National Ataxia Foundation, is hosting a series of monthly virtual coffee chats specifically designed for parents of school-aged children and younger. If you are seeking support, resources, or answers to non-patient-specific questions about ataxia, join this interactive and informal discussion, moderated by Dr. Barañano from Johns Hopkins and the Kennedy Krieger Institute, who is a key member of the CACNA1A Foundation's Research Network and one of the authors of our soon-to-be-published clinical care guidelines on CACNA1A-related ataxia. For more information, click HERE
Upcoming Dates - Tuesday, October 1st; Friday, November 1st; Sunday, December 1st
Time - 2:00 pm EDT
Zoom link - https://us02web.zoom.us/j/83517215745?pwd=OVbZ1OTeQn9H7fJkTEZr0lFl7OSc9S.1
Meeting ID: 835 1721 5745
Passcode: 664294
MINTED Fundraiser - Stationary, Invitations, Holiday Cards & Gifts
It’s that time of year — Need holiday cards, stationary, or gifts? Minted has it all! Minted’s Fundraising Program not only offers you a 20% discount (use promo code above at checkout) but then donates 15% of the net sales from your purchase back to the CACNA1A Foundation…it’s a Win-Win!
Promo code valid on all Minted orders except fine art prints (discount can be applied to children’s art), commissioned art, customizable fine art, products purchased from the “direct from artist” section, fabric goods, membership fees, Photo Op or styling or customization services, tax, and shipping charges.
