CACNA1A

If you are an adult with CACNA1A-related disorders or the parent, primary caregiver, or primary guardian of someone with CACNA1A-related disorders, we encourage you to register in our Champion Registry below.

By registering, we can keep you informed about research and clinical trial opportunities, provide educational and advocacy resources, and help connect families facing similar challenges. Your information will never be shared for commercial purposes. If you're unsure whether you're already registered, need to update your information, or have any questions, please email us at info@cacna1a.org