Clarify CACNA1A

Welcome to the CACNA1A Foundation blog: updates on current research, advocacy efforts,
therapy options, community activities and real life experiences of caregivers.

Toby Jean Lunstad Toby Jean Lunstad

The Importance of Testing and Individualized Treatment for CVI

The world of cortical vision impairment (CVI) introduced my family and me to a whole new “language” regarding vision. We learned that for children who are born with CVI, getting this diagnosis early in life is crucial. It’s critical for any child diagnosed with CVI to be assessed with the CVI Range as early as possible because it provides the framework for individualized interventions.

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Toby Jean Lunstad Toby Jean Lunstad

Living Life With Cortical Vision Impairment

Our family was catapulted into the world of cortical vision impairment (CVI) after our youngest daughter, Addilynn, experienced a status epilepticus event that resulted in her suffering a traumatic brain injury (TBI) at the age of three.

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